End of treatment
Your child has finished treatment for cancer. What happens now? Parents and carers look forward to this date from their child’s cancer diagnosis although some parents and carers are worried about ending treatment.
However, the end of their child’s treatment can also be a time of change and expose parents and carers to new emotions, feelings and experiences1.
We want to provide parents and carers with information and support during this time. Specifically, we will:
- Enable parents and carers to reflect on how they are feeling
- Confirm that they are not alone in feeling like this
- Offer some strategies and information that might be useful in helping support their emotional health and wellbeing
This resource will enable you to recognise the feelings families may experience and the support available for them.
Where you can get support
The end of your child’s treatment can be a time of change and expose parents and carers to new emotions, feelings and experiences.
These feelings are common and there are a number of organisations that can provide support during this time.
|NHS Choices: Mood self-assessment||We can all feel low, anxious or panicky from time to time. Check your mood using this simple questionnaire and get advice on what might help.|
|American Cancer Society: When Your Child’s Treatment Ends||The end of a child’s cancer treatment can bring mixed emotions. You may feel excited, happy, hopeful, and scared or worried all at once. You may find that it is hard to be done with treatment in ways you did not expect. We will review some of the challenge’s families face at the end of treatment and some suggestions for managing the transition|
|CLIC Sargent||CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families.|
|Teenage Cancer Trust||Teenage Cancer Trust is the leading cancer charity supporting teenagers and young adults with cancer in the UK and will continue to support young people after end of treatment.|
|Samaritans||Samaritans offer a safe place for you to talk anytime you like, in your own way – about whatever’s getting to you.|
|PASIC Cancer Support for Children and Young People||The local charity PASIC Cancer Support for Children and Young People and CLIC Sargent hold a parents group for families of children who have completed cancer treatment.PASIC will continue to support families for three years after the end of treatment.|
|Children’s & Young Persons’ Integrated Cancer Service [CYPICS]||Children’s & Young Persons’ Integrated Cancer Service [CYPICS] hold two End of Treatment days per year one in Nottingham and one in Leicester. This day gives the families an opportunity to sit with other parents in the same position, discuss how they feel the professionals then join them to answer any questions.Children’s & Young Persons’ Integrated Cancer Service [CYPICS] – Nottingham Childrens’ HospitalNottingham University Hospitals NHS Trust, Queen’s Medical Centre, Derby Road, Nottingham. NG7 2UH.Telephone: 0115 924 9924 – Extension: 63383 / 65302Direct Line: 0115 849 3302Email: CypicsAdminTeam@nuh.nhs.uk or NUHNT.CypicsAdminTeam@nhs.net|
|References / Links to papers||Björk, M., Nordström, B., Wiebe, T. and Hallström, I., 2011. Returning to a changed ordinary life–families’ lived experience after completing a child’s cancer treatment. European Journal of Cancer Care, 20(2), pp.163-169. https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2354.2009.01159.xhttps://journals.plos.org/plosone/article/|